Fight Against RARE
Support the Raiden Science Foundation (RSF)
RSF aims to unite the community in developing cures for RARE diseases, starting with UBA5 disorder.
Raiden serves as the inspiration for RSF. In 2021, when he was diagnosed with UBA5, there was no treatment or research, leaving little hope. However, in 2023, a ground-breaking treatment for UBA5 is on the horizon, and RSF is in a race against time to bring it to fruition.
Rare diseases aren't as uncommon as they seem. They affect 200 million children globally, and sadly, 60 million won't reach their fifth birthday. RSF's goal is to scale their research today to give RARE kids a fighting chance tomorrow.
Together, we've raised more than
to support rare disease research
Join us for Season 2 - Summer Fights ☀️ to raise $100,000
July 6th - September 30th
Community Is Our Superpower
The incredible power of our community's love and support makes a difference in the world of rare disease impacting kids. A world that is often overlooked and undersupported.
"I rather my kid suffer from cancer because there's hope, support and a fighting chance."
Kasey W. - A Rare Disease Mom
All funds raised from our community go directly towards supporting the development of life-saving treatments and enhancing understanding of rare diseases among researchers and the general public.
Check out the highlights from our Season 1 campaign last October