Fight Against RARE
Currently supporting the Raiden Science Foundation (RSF)
We aim to unite communities to power treatment and cures for rare diseases.
Raiden serves as the inspiration for RSF. In 2021, when he was diagnosed with UBA5 disorder, there was no treatment or research, leaving little hope. However, in 2024, a ground-breaking treatment for UBA5 disorder is on the horizon, and RSF is in a race against time to bring it to fruition. Like many rare diseases, funding is needed to drive life-saving research before it's too late.
Rare diseases aren't as uncommon as they seem. They affect 200 million children globally, and sadly, 60 million won't reach their fifth birthday. RSF's goal is to scale their research today to give RARE kids a fighting chance tomorrow.
Together, we've raised more than
$175,000
to support rare disease research
Stay tuned for our next event...
Community Is Our Superpower
The incredible power of our community's love and support makes a difference in the world of rare disease impacting kids. A world that is often overlooked and undersupported.
"I rather my kid suffer from cancer because there's hope, support and a fighting chance."
Kasey W. - A Rare Disease Mom
All funds raised from our community go directly towards supporting the development of life-saving treatments and enhancing understanding of rare diseases among researchers and the general public.
Earn Rewards
Unlock exclusive prizes as you fundraise to support the fight against rare diseases.
Sign up and create your campaign today!
Fight4Rare T-Shirt
Raise $150
Fight4Rare Retro Bag
Raise $300
Rewards are for the total amount raised by the fundraiser between 10/01/24 to 10/31/24
*Limited to US residents only